Research Participation Opportunities

Researchers across Canada are investigating a variety of topics important to the brain tumour community. Often this research requires the participation of individuals to help determine if hypothesis' are valid. In this case, researchers recruit members of the public to take part in their projects. On this page you will find links to current research in which you may be interested in participating.

Please note, this is not a list of clinical trials.  

The Journey for Survivors of Childhood Brain Tumours: From Post-Treatment into Adolescence and Adulthood

Participants needed for a research studyWhat is the study about?

Researchers at the University of Manitoba and CancerCare Manitoba would like to learn about what it is like to live with and manage the late-effects associated with survival from childhood brain tumours. The study is led by Dr. Roberta L. Woodgate.

Who can participate?

  • Survivors of childhood brain tumours, 8 years older and up
  • Diagnosed with a brain tumour before the age of 19 years
  • Has not been receiving treatment for the past 12 months.

We are looking to interview between 20-30 survivors of childhood brain tumours and their families (up to 2 family members).

What are participants asked to do?

  • Survivors will participate in two interview sessions. They will also photograph meaningful places, people and things.
  • Family members will also be asked to participate in an interview session.

For more information: please contact ingauge@umanitoba.ca

Download this PDF poster to find out more.

Quality of life questions for patients with meningioma

Researchers at St. Michael’s Hospital invite you to participate in the development of a patient-centered quality of life questionnaire that specifically reflects the experiences and perspectives of patients diagnosed with meningioma. Your input is essential to developing an accurate and helpful questionnaire, and we are grateful for your consideration!

If you have been diagnosed with a meningioma tumour within the past 10 years, had surgical removal of the tumour, or neuro-oncological intervention (e.g. radiation) for the meningioma, and are 18 years of age or older, please consider completing this online survey.

If you choose to participate, we will ask you to complete a survey which asks about your symptoms, medical treatments/interventions you pursued, personal/social/family well-being, coping and emotional well-being, and sources of psychological support.

Should you have any questions, please contact the study coordinator at injuryprevention@smh.ca, or at 416-864-5312.
 

Mindfulness-based therapy for brain tumour survivors

What is mindfulness-based therapy?
Mindfulness-based therapy is a group-based psychological treatment for coping with illness or disability, with the goal of improving psychological wellbeing. Mindfulness-based therapy participants learn to generate less distress, engage more positively in their lives, and respond to difficult situations more adaptively.

What is the goal of the study?
The purpose of this study is to test the effectiveness of a five session mindfulness-based therapy program in reducing depressive symptoms and perceived stress, as well as improving overall quality of life and wellbeing for BT survivors.

Who is organizing the study?
The study is organized by Dr. Steven Selchen (Psychiatrist, Sunnybrook Health Sciences Centre, Department of Psychiatry) and Ben Diplock (Research Assistant, Sunnybrook Health Sciences Centre).

Who can enter the study?
Anyone between the age of 18 to 69 years old, who:

  • has had past brain tumour-related treatment (one or more of radiation, chemotherapy, surgery)
  • has not been receiving treatment for the past six months or more (any of radiation, chemotherapy, surgery)
  • currently experiencing mild to severe depressive symptoms
  • can attend five sessions (once a week for five weeks) at Sunnybrook Health Sciences Centre in North York
  • has the ability to communicate, in written and spoken English

Please email for more information.

What are study participants asked to do?
The study asks participants to:

  1. attend one intake session to meet Dr. Selchen and learn more about mindfulness and the program
  2. attend five mindfulness-based therapy sessions (once a week for five weeks)
  3. complete a brief self-report questionnaire package on your mental health and wellbeing, three times (at the intake session, at the first therapy session, at the last therapy session)

May I contact the study to get more information?
If interested in learning more about the study and/or participating, please email or call Ben Diplock (study coordinator) at ben.diplock@sunnybrook.ca or (416) 480-6100 x81233.

 

International Low Grade Glioma Registry

What is a low grade glioma?
A non-malignant / low grade glioma (LGG) is a slow growing tumor of the brain.

What is the goal of the study?
The purpose of this study is to discover why some people develop LGG while other people do not. We also hope to learn more about the effect of this diagnosis and the associated treatments on daily life including the ability to work, drive, sleep, exercise, or take care of oneself and/or family.

Who is organizing the study?
The study is organized by Dr. Elizabeth B. Claus (Yale University School of Public Health and Brigham and Women’s Hospital Department of Neurosurgery)

Who can enter the study?
Any person over the age of 20 years with an initial diagnosis of LGG. Postmortem tissue samples and pathology reports may also be eligible for inclusion in the study. Please email for more information.

What are study participants asked to do?
The study asks participants to 1) provide a pathology report, 2) complete an online questionnaire and 3) provide a saliva sample that will permit us to look at changes in DNA. If you allow, we will also review your tissue specimens and MRI scans of your LGG. Some participants will be asked to contribute activity data and perform neurocognitive tasks via their smartphone. 

May I contact the study to get more information?
Please use one of the methods below for more information about the study.  

email the study at glioma@yale.edu

Learn more about Dr. Elizabeth B. Claus

Read this article from The International Brain Tumour Alliance.

Note: We are determined that Canada should have it's own Brain Tumour Registry for every type of brain tumour. Find out more about the progress that has been completed so far and how much more still needs to be done until every brain tumour in Canada will be counted with no enrolment necessary.

 

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