Research Participation Opportunities

Researchers across Canada are investigating a variety of topics important to the brain tumour community. Often this research requires the participation of individuals to help determine if hypothesis' are valid. In this case, researchers recruit members of the public to take part in their projects. On this page you will find links to current research in which you may be interested in participating.

Please note, this is not a list of clinical trials.  

UBC study looking to interview people who have participated in a prescription drug clinical trial

Results of clinical trials are often not published, and researchers would like to hear what trial participants think.

Clinical trials are an important part of developing new drugs and providing the best medical care. However, about 4 in every 10 clinical trials are either not published or only published after a long delay. When clinical trials are not published, this means their results are not available to the wider scientific community, making it harder for researchers, doctors and others to know which drugs are safe and effective.

Why participate in this study? 

Patients play a key role in research as participants in clinical trials, and learning their perspectives about clinical trials is important to improving medical research. We are interested to learn more about the experiences and views of people who have participated in a prescription drug clinical trial, especially to find out their views about the importance of publishing the results of trial research. 

If you join the study and are interested to know whether the results of the trial you participated in have been published, we can try to find that out for you.

You are invited to participate in this study if:

  • You participated in a clinical trial of a prescription drug in Canada within the past 5 years and your participation has now ended.
  • You participated as a patient with a medical condition, rather than as a ‘healthy volunteer.’
  • You were 18 years or older when you participated in the trial.

Participation will involve an interview of about 60 minutes (at a time and place of the participant’s convenience). Interviews will usually be held in person for participants in Victoria or Vancouver and by phone for participants in other parts of BC or Canada. Some participants may be asked to do a 15-minute follow-up telephone interview, but this will not be required. Participants will receive a $50 honorarium for their time if they wish to receive it.

To volunteer or find out more

Those interested in participating or finding out more about the Inside Trials Study can email PhD Candidate Richard Morrow or visit www.InsideTrialsStudy.ca. If you are not sure whether you are eligible to participate, please feel free to ask.

 

The Journey for Survivors of Childhood Brain Tumours: From Post-Treatment into Adolescence and Adulthood

Participants needed for a research studyWhat is the study about?

Researchers at the University of Manitoba and CancerCare Manitoba would like to learn about what it is like to live with and manage the late-effects associated with survival from childhood brain tumours. The study is led by Dr. Roberta L. Woodgate.

Who can participate?

  • Survivors of childhood brain tumours, 8 years older and up
  • Diagnosed with a brain tumour before the age of 19 years
  • Has not been receiving treatment for the past 12 months.

We are looking to interview between 20-30 survivors of childhood brain tumours and their families (up to 2 family members).

What are participants asked to do?

  • Survivors will participate in two interview sessions. They will also photograph meaningful places, people and things.
  • Family members will also be asked to participate in an interview session.

For more information: please contact ingauge@umanitoba.ca

Download this PDF poster to find out more.

Mindfulness-based therapy for brain tumour survivors

What is mindfulness-based therapy?
Mindfulness-based therapy is a group-based psychological treatment for coping with illness or disability, with the goal of improving psychological wellbeing. Mindfulness-based therapy participants learn to generate less distress, engage more positively in their lives, and respond to difficult situations more adaptively.

What is the goal of the study?
The purpose of this study is to test the effectiveness of a five session mindfulness-based therapy program in reducing depressive symptoms and perceived stress, as well as improving overall quality of life and wellbeing for BT survivors.

Who is organizing the study?
The study is organized by Dr. Steven Selchen (Psychiatrist, Sunnybrook Health Sciences Centre, Department of Psychiatry) and Ben Diplock (Research Assistant, Sunnybrook Health Sciences Centre).

Who can enter the study?
Anyone between the age of 18 to 69 years old, who:

  • has had past brain tumour-related treatment (one or more of radiation, chemotherapy, surgery)
  • has not been receiving treatment for the past six months or more (any of radiation, chemotherapy, surgery)
  • currently experiencing mild to severe depressive symptoms
  • can attend five sessions (once a week for five weeks) at Sunnybrook Health Sciences Centre in North York
  • has the ability to communicate, in written and spoken English

Please email for more information.

What are study participants asked to do?
The study asks participants to:

  1. attend one intake session to meet Dr. Selchen and learn more about mindfulness and the program
  2. attend five mindfulness-based therapy sessions (once a week for five weeks)
  3. complete a brief self-report questionnaire package on your mental health and wellbeing, three times (at the intake session, at the first therapy session, at the last therapy session)

May I contact the study to get more information?
If interested in learning more about the study and/or participating, please email or call Ben Diplock (study coordinator) at ben.diplock@sunnybrook.ca or (416) 480-6100 x81233.

 

International Low Grade Glioma Registry

What is a low grade glioma?
A non-malignant / low grade glioma (LGG) is a slow growing tumor of the brain.

What is the goal of the study?
The purpose of this study is to discover why some people develop LGG while other people do not. We also hope to learn more about the effect of this diagnosis and the associated treatments on daily life including the ability to work, drive, sleep, exercise, or take care of oneself and/or family.

Who is organizing the study?
The study is organized by Dr. Elizabeth B. Claus (Yale University School of Public Health and Brigham and Women’s Hospital Department of Neurosurgery)

Who can enter the study?
Any person over the age of 20 years with an initial diagnosis of LGG. Postmortem tissue samples and pathology reports may also be eligible for inclusion in the study. Please email for more information.

What are study participants asked to do?
The study asks participants to 1) provide a pathology report, 2) complete an online questionnaire and 3) provide a saliva sample that will permit us to look at changes in DNA. If you allow, we will also review your tissue specimens and MRI scans of your LGG. Some participants will be asked to contribute activity data and perform neurocognitive tasks via their smartphone. 

May I contact the study to get more information?
Please use one of the methods below for more information about the study.  

email the study at glioma@yale.edu

Learn more about Dr. Elizabeth B. Claus

If you are interested in learning more about this Registry, please see a recording of a webinar held in July 2019 or read this article from The International Brain Tumour Alliance.

Note: We are determined that Canada should have it's own Brain Tumour Registry for every type of brain tumour. Find out more about the progress that has been completed so far and how much more still needs to be done until every brain tumour in Canada will be counted with no enrolment necessary.

 

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