Make every brain tumour count

With more than 120 brain tumour types, they are complex and can be difficult to treat.

Stephanie Ford knows this all too well. The 38-year-old mother of twins was diagnosed with an extremely rare and inoperable brain tumour - a rosette-forming glioneuronal tumour, a type of tumour that little is known about and cannot be removed due to its location in her brain.

This reality does not stop Stephanie from her tireless efforts to reduce the stigma of having a brain tumour. "With every year passing, I have more hope for myself and others who face this kind of diagnosis. We don't want to have to go through treatments that can change us or be faced with living with a brain tumour that there's no research on. That's why every brain tumour needs to be counted; to accelerate our advocacy efforts, to support research, and ensure better treatments and services for all brain tumour patients."

Thanks to the hard work of brain tumour advocates and loyal support from hundreds of donors, on May 14, 2019, the registry website BrainTumourRegistry.ca was launched, sharing the first comprehensive data report about the incidence of brain tumours, including non-malignant brain tumours, in four provinces of Canada (Alberta, British Columbia, Manitoba, Ontario), representing 70% of the Canadian population.

This is only the beginning! 70% of the population is not enough! 

"I have had to come to terms with the notion that I am vulnerable as a human being. I have become the statistic you hear about. With your support, the Brain Tumour Registry of Canada is a step closer to helping find a cure."

Please donate and help us make sure that every Canadian with a brain tumour counts!

 

Thank you!

Share This

Featured Story

Janet and Adam's Story: Beating the odds to share another birthday together

Turning the same age, on the same day as my husband, never gets old. They call us, Astro-Twins. According to many different sources, the odds were low that it would have lasted. His Auntie May discouraged it from the start saying, “You are both Sagittarians and should NOT be together.” My daughter Isobel did a quick calculation. Fun fact. In a group of 100 people there is a 2.8% chance of two people having the same birthday.

Learn more

Spotlight

Lawrence's Story: Be happy, live happy

Lawrence, a successful businessman, is not one to take a decline in memory lightly. Lawrence was in Winnipeg, at home on leave from his...

Learn more

Alicia's Story: You gotta laugh every day

It’s hard to capture an infectious giggle in words, but that’s exactly what you get when you speak to Alicia. Alicia is now 20 years...

Learn more

Upcoming Events

  • 10/Dec/2019: Virtual Support Group West: Virtual Support Group for Western Canada... Learn more >
  • 10/Dec/2019: Groupe de soutien virtuel: Un groupe de soutien virtuel pour personnes touchées par une tumeur... Learn more >
  • 10/Dec/2019: Kitchener and Waterloo Support Group: Meets at Christ Lutheran Church, 445 Anndale Rd., Waterloo, ON... Learn more >
  • 10/Dec/2019: Saskatoon Support Group: Meets at W.A. Edwards Family Centre, 333 4th Ave N., Saskatoon, SK ... Learn more >
View All Events >
Thank you to the donors whose contributions make this website and all programs, services and research possible.

Copyright © 2019 Brain Tumour Foundation of Canada. Charitable Registration #BN118816339RR0001