Yaron's Story: 15 years of Hope

Yaron's Story: 15 years of Hope
This February 23, 2019, it will have been 15 years since I collapsed in a grand mal seizure and was subsequently diagnosed with Glioblastoma (GBM).  
 
It’s been quite the adventure since the last time I shared my story. I acquired a certain degree of double vision on my left eye — a long term effect of the radiation I had in 2004. Seeing double isn’t always a bad thing but look forward to having that corrected. In 2016, I had a minor seizure as a result of my anti-seizure medication being low. Unfortunately the seizure resulted in cognitive effects ultimately forcing me to take a break from my work as a cancer researcher. I do look forward to returning soon.
 
With a goal of completing my memoir of my cancer experience, I recently graduated with a Certificate in Creative Writing from Simon Fraser University. Hopefully my story will be published soon!
 
As a long term survivor, I’ve had the honor of supporting others going through the diagnosis. In December, I decided to ask a number of Facebook brain cancer groups that I am a part of, to tell me a word or a few words that describes their experience with brain cancer. I received over 250 responses from around the world and was amazed to see the number of different words. I created this meaningful image and realized it captured feelings inside me I wasn’t even aware of.  I posted the image and received a number of responses such as:
 
  • This is amazing. It’s everything you feel but can’t convey to people who don’t understand what it feels like.
  • Awesome! That is one heck of a positive message!
  • It’s beautiful and really captures all of our feelings.
    Hope wordle, inspired by fellow brain tumour survivors.
I kept receiving words so updated the image, added more colour and made sure “Hope” stood out. I also made some words larger with a different colour to reflect that a number of people that had given me that particular word. Mostly positive thoughts are in the brain. Another way to express the feelings of hope, love, strength and courage that we all feel dealing with brain cancer.  
 
 
Yaron's paintingYaron's painting
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
  
Thank you Yaron, for sharing your story and your art with us all. 

Story shared in February 2019

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